Lil Red’s Legacy – Sepsis Awareness

Episode 9 September 27, 2023 00:34:53
Lil Red’s Legacy – Sepsis Awareness
A WonderCare Podcast
Lil Red’s Legacy – Sepsis Awareness

Sep 27 2023 | 00:34:53

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Hosted By

Sheena Mitchell

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A WonderCare Podcast
A WonderCare Podcast
Lil Red's Legacy - Sepsis Awareness
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Lil Red’s Legacy – Sepsis Awareness

This episode is so important.  Up and coming rap artist Sean Hughes from Finglas in Dublin was only 15 years old when he died from sepsis on 12th January 2018.

Today I explain the signs and symptoms of sepsis and chat with Sean’s parents Joe and Karen about his brief illness and devastating death.

Joe and Karen have selflessly worked to raise awareness of sepsis in Ireland since the sad death of their son Sean.  

We hear Sean’s music and his amazing self expression through rap.  I am so moved by his lyrics and am so sad that his time with his family was so sort.

Thank you to Lil Red’s Legacy Awareness Campaign for all of the amazing work that you do – Karen and Joe you are saving lives and that is some amazing legacy for Lil Red to have.

Please also visit The Irish Sepsis Foundation

I answer all of the questions that came through my question box over on my Instagram account @WonderCare_Irl

Season 5 Partnership – Salin Plus (available here!)

I am so thrilled to be partnering with Salin plus for an entire Season packed with lots of family health information! This 100% natural salt therapy device is suitable for both adults and children!  Tune in to learn more!

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Simply following and reviewing this podcast can make a huge difference! I would be so grateful if you could follow or subscribe to the show! I aim to support parents and appreciate every one of you who take the time from your day to learn something new along with me!  I explain medical conditions and their treatment as well as chatting with experts about a whole range of medical and parenting challenges. Of course I can’t forget our little voices episodes where I chat with kids and hear things from their point of view!  I’m also extremely grateful to everyone who contributes to a real lives episode – I learn so much from these and am privileged to be able to share your story which will help people who find them in a similar situation in life. You can check out all of my previous episodes by clicking right here!

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Episode Transcript

[00:00:00] Speaker A: Sepsis is a potentially life threatening complication of an infection that can affect anyone of any age. It is more common in the very young, the elderly or those with a weakened immune system. Without quick treatment, sepsis can lead to multiple organ failure and death. This episode is a little bit different. In this episode I get help from Sean Hughes and his parents Karen and Joe to help explain the devastating effect that sepsis can have on a family. Sean Hughes died at only 15 years of age from sepsis on the twelveTH of January 2018. It is very rare to have the opportunity to get to know somebody after they've died. But because Sean was an up and coming rap artist from Finglas in Dublin, he has recorded music which express, as he says himself, his soul and his being. Before I go on to talk about the symptoms of sepsis and to chat with Karen and Joe about how Sean's story unraveled, I think it's really, really important to hear from Sean how full of life and determination he was. I have never come across a 15 year old who knew exactly what they wanted to do and how to get it. Sean had drive, charisma, personality in abundance and a loving family. I am so sad when I hear him rapping that he was taken from his family to animal and suited me. [00:01:36] Speaker B: For rapping you cannot tame to get noticed is my aim my passion for rapping is in me bloodstream mirrors are so toy are extreme I'm little red you're going to hear it a lot hit whoever signs me will hit the jackpot rap so toy day are red hot. Hit you so hard to fluke a gunshot? Yeah, chase me, dream. I'm so headstrong. If you think I'm a pushover party, I wrong. We've been doing this thing for so long that rapping the Royman is where I belong not queer, man, not quit a kid on this rap game I'm going to lift the lid trying to make a living trying to make a few quid my passion for rapping cannot remain here yet you can't annoy that. I have my skills. Just a normal chap. You won't see no bills. When I make it big, I won't worry about bills. About bills. All I want to do is get me name out there I'm the freshest young rapper with the red hair all you shine rappers should take her beware or seek open you all unaware all I think about is chasing my dream of one day making it as a rapper supreme oi no or showing like a sunbeam oibie royman the rapping to blow off steam to blow off steam. [00:03:04] Speaker A: It'S not always easy to tell if someone has sepsis. There are lots of possible symptoms and sometimes they can be vague and mirror other conditions like flu or chest infection. You don't get sepsis unless you already have an underlying infection and as you'll hear throughout this episode. It's really important that sepsis is spotted early on because many deaths are preventable once a diagnosis has been established. It's for this reason that I want to highlight some symptoms that you need to flag with your GP so that they can refer your baby or child to hospital for further diagnosis or treatment. Contact your GP or out of hours GP urgently if your baby or child has an infection and has a temperature of over 38 degrees Celsius or higher in babies under three months. 39 degrees Celsius or higher in babies. Three to six months or a temperature below 36 Celsius and do recheck temperatures after five minutes to confirm if your child has any difficulty breathing, breathlessness, or you notice their stomach moving in and out as they use their stomach muscles to help them move if your baby has no interest in feeding if your child hasn't drank anything for more than 8 hours while awake if they begin vomiting repeatedly if they have blood in their vomit or their vomit is green or black if they have sunken eyes, a bulging soft spot on their head if they have no interest in anything, even with encouragement if they've become less responsive, irritable or difficult to console if they have a stiff neck, especially when trying to look up or down or even if they've just been behaving differently than usual to the point that you're worried, call one one two or go to an emergency department. If your baby or child is under five and has blue, pale or blotchy skin, lips or tongue, a rash that won't go away when you roll a glass over it the same way that you check for meningitis. If they're being very sluggish, unusually sleepy or difficult to wake if they feel unusually cold to touch, or have had no pee or Wet Nappies for more than 12 hours if they're breathing very fast or has a fit or convulsions if they have a weak, high pitched cry that's not like their normal cry. If they have an infection and they're still getting worse after 24 hours, it may be sepsis. They may not have all of these symptoms, but even if they just have one, get urgent medical attention for older kids or for adults, call one one two or attend an emergency department if they're acting confused, have slurred. Speech or they're not making sense or being their usual self if they have difficulty breathing or they're breathing very fast if they have blue or slightly blue lips pounding in their chest, cold hands and feet or look clammy and pale if they feel dizzy, faint or lose consciousness if they're not peeing as much as normal, for example, not peeing for a day if they have a rash that doesn't fade when you roll a glass over it. If they have severe muscle pain, or if they're complaining of severe leg pain or difficulty standing again if they have an infection and they're still unwell after 24 hours or getting worse. It may be sepsis, so do seek medical attention. Karen and Joe have experienced traumatic and devastating grief through their loss of their son Sean, and I am grateful that they have joined me for today's episode to share Sean's story. It helps to make the reality of Sepsis a bit more real and can show how quickly a healthy young man with no underlying health conditions can die. I just want to apologize about the quality of the audio as we had a few technical issues while recording, so the line isn't as clear as it normally is, but we just wanted to plow on and get this episode out to raise awareness during September because September is Sepsis Awareness Month. I'd like to thank Joe and Karen for articulating their story so well, and also to Sean's sister Zoe, because Joe, Karen and Zoe have done all they can to raise sepsis awareness in Ireland to try and save lives of other children like Sean. [00:07:36] Speaker C: Thank you so much, Joe and Karen, for joining me today to talk all about Sean. Can you tell me a little bit about what he was like as a child growing up and then as a rapper? Because I know he had an amazing, keen interest in rapping and a real talent first. [00:07:52] Speaker D: So Sean was born on the twelveTH of July 2002. From an early age, Joe myself knew that he was an absolute character from when the time he went to preschool, he was liked by everyone, teachers, students, everyone, and like that. He was your typical child into everything football, Gaelic, he even done boxing. And when he got a bit older, then it was the music that really inspired him. Myself and Joe used to listen to rap music. We grew up with rap music, and that's where Sean got his liking from, because we always had rap music playing. And Joe used to collect Sean from school, and they'd have the rap music players now, the Karen, the two of them be rapping along to it. And that really inspired him now to pursue his music career, especially in rap. And then he joined a local music group here in Finglas and from that he performed in the Aviva Stadium, CLO Park, the Helix National Concert Hall, the Access Center, anywhere he'd be asked, he would perform and not a bother to him to do it. He's great confidence, he's brilliant at his and as I said, as Sean grew up, he was liked by everyone, he really was, and he respected everyone. Yeah, he had a bright future ahead of him, he really did. And he actually had a scholarship from secondary school called the Rise and Tide and he wanted to go on to produce music, so they would have put him on the right path then to pursue his career in that. So, yeah, he loved life, he was a happy kid. [00:09:34] Speaker C: You can really hear in his music his passion for life and his determination to live a vibrant, strong life just the way he wanted it as well. I love that about him, his determination. There was nothing going to stop him. He knew where he wanted to go and how to get there. And he was just saying, Listen up, world, I'm coming for you, kind of thing. [00:09:56] Speaker D: That's it. Absolutely. Yes. That was Sean down to a T. Yes, definitely. [00:10:00] Speaker C: And you can see on the pictures of him and I'll obviously share them on our Instagram. He's such a sparkle in his eye and just really you can just see vibrant life. [00:10:13] Speaker D: And he loved his designer clothes. He used to save up money and then buy his designer clothes online. And he loved looking dapper. I love that. [00:10:23] Speaker C: He made the most of being a redhead as well, obviously. [00:10:26] Speaker D: Oh, he did. Yeah, he did, absolutely. And he's rosy cheeks then. Yeah, that's where he loved it. [00:10:33] Speaker C: His stage name came from, anyway. [00:10:35] Speaker D: It did indeed sheena. [00:10:36] Speaker E: Yeah. We had plenty of confidence and he wasn't sure, but he's still humbled the way we wear them to be treat people as he treats you and respect your elders and things like that. Sean has a sister named Zoe, and they were the best of friends at most times. And they would look all kids didn't go on sometimes, and the next day they were the best of friends. And Zoe has her own young child. And in honor of our son Sean, she named her son Sean. [00:11:09] Speaker C: Oh, God, that's lovely. [00:11:11] Speaker E: And there's a lot of the same characteristics in young Sean as it was in our son Sean. Definitely. When people say he's a character, he was here before. That's a definite for our grandson. He was here before. [00:11:24] Speaker C: That's so special and nice to have that connection and to see the next generation coming along. [00:11:31] Speaker E: Yeah, he's always talked in this house. We always talk about Sean every day. And young Sean will say, Uncle John's room. Sean's room is the same as it is today. He passed away. He has wardrobes full of designer gear. He has his TV, his Xbox, everything's still there. His mom changes the room, changes the sheets, changes the curtains and what have you on a regular basis. And we come into his room and we speak to him, keep the memory going. [00:12:01] Speaker C: It's probably a nice space where you can feel very close to him and just immerse yourself in his personality. [00:12:11] Speaker E: Of course, his books are in the room there that he used to jog down a few lyrics and always read his rhyme book. And it's great to look back on them and it's great to listen to his music, too. Sean, he written and performed and recorded his own CD. Produced his own CD by the age of 15. By the age of 15. [00:12:31] Speaker C: There's not many teenagers who have such conviction in what they want to do, who know themselves that well, that they have that confidence that they're already pursuing their dream. Most people are still figuring that out when they're 30. [00:12:45] Speaker D: Absolutely right there. He did. He knew what he wanted to do, really, from a young age and what. [00:12:51] Speaker C: Happened when he got sick. Can you explain the run up and how that unfolded? [00:12:57] Speaker D: Absolutely. So on the eigth of January 2018, sean came home from school and he said to me, I don't feel well. He said, I have like, flu like symptoms. I said okay. I said, well, you're off tomorrow. I said, I'll give you a lem sip. I probably gave him Norepen as well. I said, just kind of sweat area as you would with yourself with a flu like symptoms. So on the Tuesday then, I heard him laughing and joking. He was FaceTiming someone on his iPad. And I said, he must be feeling somewhat better. So it was later that night. Then he had said to his sister Zoe, I don't feel great again. It's like it was coming and going on by this time. He said his chest was haunting him then as well. So I called him for school on the Wednesday morning and he said to me, I absolutely feel rotten. I said okay. I said, I'll try and get an appointment with the doctor. I did actually manage to get one at 11:00 that morning. So I brought Sean down, and by that time Sean was extremely quiet. Sean was never quiet. You'd hear him from a mile away. He kept getting worse, feeling the way he felt with the illness he had. So I brought him down to the GP and she said that he has a chest infection, a high fever, and he has an influenza. So she said, I'm going to give him an antibiotic in case it progresses to pneumonia. So I said, okay. So Joe actually brought Sean home that day and I got his prescription, so I got it into him straight away. But by that evening, then he was coughing then at this stage, and he was coughing up a lot of phlegm and he was very irritable. He couldn't sleep. So I was giving him his antibiotics, I was giving him his painkillers in between, say, that was the Wednesday night then. And he said, I can't sleep. And it was one thing that always sticks to my mind afterwards. He said to me, I feel like I'm going to die. And it didn't resonate with me until I actually knew afterwards that that was actually one of the signs of sepsis, that people say that they have an overwhelming feeling of doom. People are saying to me, like, people say that when they have a flu as well. So by Thursday then Thursday morning, then I'm looking and saying, he seems to be getting a bit worse. The antibiotic should be kicking in. And then I was thinking, well, he's coughing off phlegm is the antibiotic actually getting into his system. So then I don't know whether you remember Sheena, but around January 2018 was an Aussie flu that had hit Ireland and the HSE were actually on the telly and the radio telling people to stay away from hospital with flu. That was putting me off. And then afterwards then when we spoke to doctors in Temple Street, they said that Sean would have been torn away because he only had a flu and he was already on an antibiotic, which I found quite disturbing because I had said to the previous Minister for Health as well that people can die from flu. And you have to stop saying that or say it in a different context. [00:15:45] Speaker C: It's funny because what strikes me from what you're saying as well is that flu like symptoms and him feeling unwell, all of that is quite normal for flu and say a chest infection. And obviously even him saying, I feel so bad that I'm going to die, as a parent I would have done exactly what you did. You're going, okay, flu, I know I have to manage this at home. He's on the antibiotic. If there is a chest infection there, I'm doing all I can. [00:16:20] Speaker D: Absolutely. Yeah. [00:16:21] Speaker C: So it's so normal. And one thing I can see the difficulty because obviously the hospitals are trying to especially in COVID era now reduce infection spreading around hospitals. But it's that line that's really difficult and I think the main thing here is a mother's gut instinct and you knew that you knew Sean and fact that it struck you but you did everything. Were you followed the guidelines yeah of yeah. [00:16:52] Speaker D: Yeah. And then I remember sitting there Thursday and then he was getting short of breath then and I said he doesn't and then I was saying, what do I just bring him in? And then I made a decision then I said, you know, I'm going to bring him back down to his GP and maybe he'd give me a letter to send him in that he'd be saying to quicker or whatever. That's the decision I made on the tour the evening. Sure. We never got to the doctor on Friday morning because he was dead. He stopped breathing about half eleven. I was talking to him. I always set up with the kids when they were sick, always. And about half eleven he was on one sofa, I was on the other, and he was trying to talk to me. He even said to me, you can watch that crap that you watch on Netflix. He said, I don't mind. And with that he stopped talking and I jumped up straight away I knew there was something seriously wrong and I couldn't wake him. And I called for Joe and Joe administered CPR while I phoned for the paramedics. So it happened. [00:17:50] Speaker C: So just I don't know what you could have done differently. [00:17:56] Speaker D: Yeah. As people said to me. Friends of mine had said they would have put their child to bed with paracetamol and probably just left them there to sweat it out. And because it was a flu he's been treated for, they said, we wouldn't have set up with them. I did do everything right. I did. [00:18:13] Speaker C: And that's that's little comfort to you now, but at least at least you know that because you did absolutely do everything you could. [00:18:23] Speaker D: And it was just horrifying to hear sorry. It was horrifying to hear that he would have been torn away from the hospital. He could have died in the car on the way home. When you think of it that way too. [00:18:35] Speaker C: And what do you think needs to change? How can we prevent stories like this and children like Sean from sepsis death? At what point do we refer them? [00:18:51] Speaker E: When we found out that it was sepsis, that Sean passed away from Sean's tragic and preventable death from sepsis. That's what always sticks in my neck is that Sean's death was preventable. Sepsis deaths are preventable, but it all begins with age recognition and then rapid treatment. So there was three sets of medical professionals that failed Sean, that failed to spot sepsis. You had the family GP, then you had the paramedics, then you had the doctors in Tempestry. Three different sets of doctors failed Sean. [00:19:29] Speaker C: I think it should be standard practice if you've got a child that's maybe so very unwell to do bloods, because. [00:19:38] Speaker E: Bloods will absolutely, yeah. We have always said, we've said, know, if a patient presents to the GP or the hospital with any kind of infection, why not start at the most drastic? Why not start with sepsis and walk away back? Because what we know about sepsis now so what happened when Sean passed away first and we heard about sepsis, we had no idea what sepsis was like. A lot of people, we went on the internet, first point of call was the HSE, and there was little or nothing on it, anything that was on it. Shane on the website was geared towards medical professionals, not normal, ordinary, know, it was too overcomplicated. It couldn't make heads and tails out. So we went onto the UK websites and the US and what we found out about sepsis, and then we got the land. The signs and symptoms of sepsis. El sean was displaying every one of them. So if the doctors, if the GPS, if the healthcare professionals here in Ireland were more sepsis aware, there would be definitely less deaths and less disabilities from sepsis. Because if you survive sepsis, you never get your health back 100%. You can be left with disabilities, you can be left with amputations, psychological problems. There's a huge kickback. If you do survive sepsis, it can. [00:21:05] Speaker C: Trigger underlying disease to present more aggressively as well. [00:21:11] Speaker E: Whatever research then we got to learn that in 2018, ironically, the year that Sean passed away, that there was a study done and it showed that only 28% of the Irish public had an accurate understanding of what steps it was 28%. So when we started Little Red's Legacy this year, we done a similar study and it showed that there is an increase. It's 42% now. It's a definite increase, but it's still very low. We decided to set up Little Red's Legacy sepsis awareness campaign due to the lack of knowledge in the Irish public on the signs and symptoms and the dangers of sepsis. We're five years doing what we do and we're well over the Tortill mark. Torture people have been at least torture people have been in touch with us saying that their life or someone they care for life has been saved because of Sean Storied and Lil Red's Legacy steps away in his campaign. [00:22:12] Speaker C: And it's such a powerful thing to do and such a fantastic way to let Sean keep breathing life into this world by saving the life of others. [00:22:23] Speaker E: That was the whole aim of the sure, this is what Sean would want as a family. Here we hold regular events, we go around skills and colleges, sports clubs. Given the Steps awareness presentation, we've been in Leicester house a couple of times and we're in there again now, next week, the week after. Sorry to give another sepsis awareness presentation to the Senators and TDs in there. [00:22:48] Speaker C: It's amazing. It's amazing. I know I mentioned the symptoms and signs and explained what sepsis was at the beginning, but one of the key messages that sticks with me and through reading about your campaign and everything is if your child is very unwell and you have concerns, just ask that question to the medical professionals. [00:23:10] Speaker E: Just ask, could it be sepsis? Another one is, if there's infection, think sepsis. Because sepsis doesn't discriminate against age, gender or race. Anybody can get an infection. Anybody can get sepsis. Another part of our research has shown that there's an average of 3000 deaths in Ireland every year from Sepsis. That's an average of seven deaths a day in Ireland from sepsis and there's very little known about it this year, thankfully, it seems to be picking up a little bit more. There's definitely a bit of momentum behind this awareness. We're out of five years. It's been a hard five years. And from day one, Sheena, we always said if there was somebody doing this, we wouldn't have to do it. As we said to the previous minister and this Minister of health, do the earliest public not deserve the gold standard of health care like other countries in the world? Of course they do. Our spare time, we go around clinics and hospitals and we put up sepsis awareness posters and give out the leaflets and that's in the maternity hospitals, in the agency clinics. And this is what we do. Our mission to empower people with the knowledge of how to recognize the symptoms of sepsis. All because we don't want another family to go through what we're going through every day. [00:24:26] Speaker C: Gina, it sadly reminds me very much of Siobhan Carroll, who's the founder of act for Meningitis, who lost her daughter Ava and has now set up the only meningitis charity in Ireland. As you have just said, it shouldn't be down to families who've experienced traumatic grief to see that there is no one else doing awareness campaigns. And it shouldn't be down to you to try and inform and educate the public like that. Health promotion is the biggest asset to our health system that we can have. It literally, as you've said, you've saved 30 lives. I know that I'll obviously be sharing and sharing this story and I'm so, so grateful that you're doing what you're doing, but it shouldn't fall on you. [00:25:17] Speaker E: From day one, when we started this, we were saying, look, there's no glory in what we do. We don't do it for money, we don't get wages for doing this. We do it our respect for our son and they help other people. But look, it doesn't matter if it's us, the man next door or the man on the moon who's raising awareness about sepsis once it's being done. The truth of the matter is before years down the line, doing the sepsis awareness campaign and five years down the line, the tragic and untimely death of our son, but we haven't grieved properly yet. And as somebody said to me, why would the HSE or anybody else put effort into raising awareness about sepsis when you guys are doing it and you're doing it better? But it shouldn't be that way at all. I will have to give credit where credit is due. It is being taken up now by the HSE this year. I've seen more than I have seen in the last four years. Yeah, we're in September, which is Sepsis Awareness Month. The tour day in September is World Sepsis Day and there's been quite a lot going on. We've been working with the HSE previously and we produced a couple of educational videos which are being shown in some of the major hospitals and the maternity hospitals, and we have worked with them to produce a new, fully comprehensive all in one sepsis awareness leaflet. They are getting in roaning behind us. Fair enough, COVID struck, but we can't hide behind COVID all the time. [00:26:41] Speaker D: Sepsis was still there while COVID was still going on. [00:26:44] Speaker E: As I said, there's seven deaths every day in Ireland from the preventable sepsis. If there were seven deaths a day in Ireland from anything else, there'll be public outcry. Sepsis doesn't discriminate know we have an aging population here in Ireland and these are picking up infections. So they say the young and the old and anybody with an underlying health condition is more susceptible to getting sepsis. That was our son young underlying health conditions. So we're not doing what we do to scare people but I think the ages here scared them by not telling them. [00:27:17] Speaker D: Absolutely. Yeah. [00:27:18] Speaker C: Head in the sand approach is not what we need. [00:27:21] Speaker E: Yeah. [00:27:22] Speaker C: And actually, like, last winter, we had our worst RSV and flu season, and this year I can't imagine that it's going to be much better. And sepsis can come from any infection, bacterial or viral. So I think what you're doing is really powerful and important so that parents will know now that if their child is showing signs of sepsis, that they may need to push and to bring up the word sepsis and, as you say, rule it out and move back the way from there. [00:27:56] Speaker E: Absolutely. [00:27:56] Speaker C: Like our health service, I've been saying it for years, our health service is failing us. We have not got well resourced and we have an adequate supply of GPS. None of this is the fault of the public and we should not have to accept busy GP surgeries. We need prompt access to urgent health care. And that's why I've been campaigning for the expansion of pharmacy services to try and free up some of the GP time so that they can see these patients like Sean. And I know he was really fortunate to get the GP rather quickly at the time, but the landscape has changed and that isn't happening for people now. They're being told they can have an appointment in two weeks and that's no. [00:28:39] Speaker D: I know, it's crazy. I mean, we were absolutely horrified, Sheena, as Joe said, when Sean passed away from sepsis and then we kind of started looking around dr sordry's, hospitals, clinics, there was nothing, absolutely nothing about sepsis. There was leaflets about headlights, footcare, diabetes, all the other heart attack strokes, nothing absolutely about sepsis. So our biggest thing was to have leaflets done to make people understand what sepsis is and how to recognize it. And we did leaflets with the HSE. We were in collaboration with them and they had Sean's likeness on them. They never transpired. So we said it to them again to do a leaflet, an all in one universal that covers everybody, and have it in the GPA surgery. So they're going to roll them out in the GP surgeries because the information needs to be in the parents hands, because that's probably the fourth part of call with most parents, is the GP surgery. [00:29:36] Speaker C: Even in those information packs that you do get, say, about feeding your baby and minding your baby when your baby's first born, that you get off the public health nurse, it should be included in there as well. [00:29:47] Speaker D: Definitely. [00:29:48] Speaker C: As you said, sepsis is one of those medical terms that nobody really knows until they've had a family member who's experienced it. [00:29:56] Speaker D: Exactly. Yeah. And I mean, not every infection leads to sepsis, but just to be vigilant or just for people to have the awareness and that's what we're all about. [00:30:06] Speaker C: Is the awareness and just to ask that question. [00:30:10] Speaker D: Yeah. Absolutely. Don't be afraid to ask. Could it be sepsis? [00:30:13] Speaker C: It's very important now for parents to advocate for their children's health, especially because the health service is so overburdened. You need to ask, you need to fight for everything to be absolutely. Well, I was going to say you guys should be getting state funding, but really by the sounds of things you're exhausted and I understand why you're doing what you're doing, but it's important, as you said earlier, to be able to have time to grieve your child as. [00:30:40] Speaker E: Well because we're not going down. We don't need any funding of anybody. We never looked for anything. What we do, we do it out of pride and remembrance of our son and as we do ourselves. Some days you get out of bed and you can take on the world and some days you can't get out of bed, you don't lift your head off the pillow. Because we suffer in this family here with PTSD and we're here for each other. There's four of us here under this roof and we're here for each other all of the time and if one's having a bad day, the other one will kind of pick them up. We never looked for any state fund. Let the state keep the phone and then give it to the HSE to pick up and heighten sepsis awareness campaign. One of the things we've been wanting from day one is an advertisement on all these national television for sepsis awareness. [00:31:32] Speaker D: Because we think it'll reach a wider audience because social media alone hits so many where? If it was on TV. Like we did our research, we said, like the meningitis ad, like the Strokes ad, like the heart attacks. Sepsis awareness should be up there as well. With an ad on TV now. At the moment we have Sean's posters on Dublin bus. There's a good fleet of them now with Sean's posters with the signs and symptoms and then also we have his posters in some of the shopping centers around Dublin as well with the signs and symptoms. So we're just trying to promote the awareness all the time. [00:32:04] Speaker C: I am humbled by your strength and as a parent I'm really, really grateful and as a healthcare professional myself, it's really focused my mind on educating patients in the pharmacy and online and I want to take this chance to thank you so much for the work that you're doing. I think it's only appropriate that we let Sean sing us out now and have the last word. [00:32:32] Speaker D: Thanks very much. Here we go. [00:32:54] Speaker B: Four on early in the morning to late and we got a pen under paper joint the room tweet. Yeah look the song in the school and going to show him free enjoying every moment in the loyal louis or maybe raps the longest and raw he wards a little slap in the jaw well put together look at Chicksaw brains in me head, mouth full of straw as you know, we know the name is Little Red. I'm no. Mongol I'm a pure Torah bread up early every morning won't catch me in bed on the open. Come on rapper with the red head I love listen to the lads from Cortis when I hear Deanie and Hades it's pure bliss all I need is a chance from people like this always straight up, never take the piss now with so many rappers on the scene to get no is my dream my passion for rapping is in me bloodstream mirrors are so tweaky are extreme hope you one day will be up on stage el me rapping we can make a wage rapping and Roy man we're passion and rage the beast inside me you cannot cage in me raps. I put me moin on me soul always original and never stole. You want to look peep true the keyhole otherwise you have to pay the tomoid destiny Oint will control from rapper one day or count the bank roll always cautious, never caught in a trap me future performance just like a map filling their pages of a fuels cap. Always keep it real, never trap crap. So listen up. All the fakes and the phonies little red. Ain't no one trick pony rapping on me, y'all. I don't need no crony. I'm that original. The one and only you eight.

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